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Tuesday, November 3rd, 2009
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10:46 pm
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| Monday, November 2nd, 2009
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4:35 pm - What I got up to last friday...
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You can sort of see me. I'm wearing a pinstripe short skirt, long jacket, and fedora, behind the guy in the fishnets and boa.
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| Sunday, November 1st, 2009
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11:04 pm - Balloons
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I had a really hard week last week. For some reason, I want some balloons. I think it's because UP is coming out on DVD soon and that reminded me that balloons are fun. If I get my bio midterm back tomorrow, and if I do well, maybe I will get myself some balloons. Although I will feel pretty silly and slightly pathetic buying them for myself. But I think that'd be a nice little reward for myself.
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| Thursday, October 22nd, 2009
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11:19 pm
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KUB and CT scan today. Only took about 20 minutes, but they couldn't see my left kidney underneath the stimulator. I'm really irritated about that.
I wrote a little song about planaria, which some of you have seen already, but I want to make a better version and post it.
Evan bought me some very nice pearls in Fiji. I'm trying to figure out what to do with them. I'm so depressed and uncreative lately, it's hard to get inspired.
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3:58 pm - Glee
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I really loved the first episode of Glee and I was really excited to see where it was going.
Unfortunately, it's really gone downhill since then. I'm disappointed to see that the Artie, the disabled kid (who's a fantastic singer) not only never gets a solo, he barely gets any lines. Mercedes (fat, black, sassy stereotype) and Tina (stutter) also don't get enough screen time, or any flushing out as characters. And can we get Kurt a love interest already? I was hoping we'd have some real portrayals of under-represented people, instead of just tokens. But most importantly...
TURN OFF THE DAMN AUTO TUNE.
I do love Jane Lynch though.
current mood: cross
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| Wednesday, October 21st, 2009
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5:31 am - Medical update
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( Bad stuff under cut )
The rest of my bloodwork came back; Vitamins A and B12 are okay, Vitamin D is a little low. D has been low for me in the past. I find this odd, since I take 1200 IU of it a day, orally, and I do spend a little time in the sun. Eve says not to worry about it too much, or the iron deficiency, since I'm not anemic. It's something we'll have to follow-up on though. She's more worried about the C-reactive protein.
I'm pretty sure the reason why I'm obstructing/partially-obstructing/whatever is that I've been getting 1800 calories a day for the past two days, thanks to Ensure. This is a very good thing, as I am already back up to 100 pounds. I can just wait and hope my body will adjust to it.
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| Sunday, October 18th, 2009
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5:16 pm
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Someday I will be a beautiful butterfly...and everything will be better.
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| Thursday, October 15th, 2009
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3:12 am - Tardigrade dance
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| Wednesday, October 14th, 2009
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4:49 pm - Bucket list, stolen from various people.
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| Tuesday, October 13th, 2009
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11:50 pm - Bits and tids
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1. Yesterday at the doctor's office, I got bored waiting for him, and there was a whiteboard in there with all kinds of stuff like "GERD" and "polymyalgia rheumatica?" and "sjögren's" written on it, and um, I may have drawn some stuff on it. Like a piggy. And then a paramecium. And then I wrote "Everyone loves a paramecium!" underneath it, firstly to identify it as a paramecium, secondly, because, well, they do. I also wanted to write "Have you considered mitochondrial disease?" but I got distracted by the fake prostates. Seriously. There were model prostates (this is what your prostate looks like when it gets enlarged!) and there were three sizes and they were squishy and made out of some sort of foam and I poked them and played with them a lot. I was tempted to steal them, but I did not.
2. Tardigrades aka waterbears aka MOSS PIGLETS can survive in space. I did not know that. That is so badass.
3. I have a couple of ideas for back-up costumes if the Red costume doesn't pan out, but I hope I don't have to use them. One is the mad scientist slash Doctor Horrible (more like Horribly sexy, amiright, hurhur) outfit, but I have worn it a LOT recently. And while it is awesome and makes me feel totally hot, I'd like to switch it up a bit. I also have a gangster costume, but I did that already in high school and I kind of want something new.
4. I now have five black and white polka dot dresses. I could wear one to school every day.
5. I am seriously considering buying a white bustier for Halloween and dyeing it red. But I am worried about it turning out right.
6. It is cold and rainy out, which means it is PAJAMA SEASON FOR RAY RAY. He doesn't much appreciate it, but he prefers it over being cold.
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10:25 pm - Woof. More health stuff.
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I saw a doctor at my GP yesterday, basically as a formality so I could get a referral to the urologist. I've seen the urologist before, but it's been four years, so I figured I'd better get another referral. So I went and saw Dr. Smith, who I've not met before, but who was nice enough. He talked to me about urologists, and how they are all guys who mostly deal with old men with penis and/or prostate issues. I said I was well-aware of this. You have to be a dick to want to examine dicks all day. I said I wanted to see a urologist and get lithotripsy again. He was vastly impressed that I knew about lithotripsy. I basically said "Honey, you don't know the half of it," and then I explained to him about all my other medical issues. I am getting kind of tired of doing this.
He also told me that men are more prone to kidney stones than women (which I knew) and the reason (which I didn't know) which is that men have more muscle, which utilizes a lot of calcium, which gets filtered by the blood and passed on to the kidneys. I don't have a lot of muscle, but it occurred to me that muscle also contains a lot of mitochondria. I did a quick search on pubmed and there does seem to be a relationship between mitochondrial dysfunction and calcium oxalate stone formation. So that may be another piece of the puzzle. I'm already fairly convinced I have mito at this point.
I also spiked a fever of 100 yesterday, and nobody knows why. It seems to be gone today. Also, the thrush infection is gone. I'm very glad, because it was gross.
Eve called me today to give me my blood results. My hemoglobin is okay, but my iron is really really low. I'm taking a multivitamin that has %100 of my iron needs, so I guess it's just not getting absorbed. The other vitamin tests have not come back yet, perhaps they will give me more clues. The other notable thing was that my C-reactive protein (measure of inflammation) was through the roof. I asked Eve if it could be caused by kidney stones, she said not to this extent. The last time I had my CRP checked was a year ago (it was normal), right after I upped my dose of Octreotide, and my intestine was working better. She also talked to Dr. Snape and he wants me to get worked up for celiac and crohn's again. Sigh and bother. I am going to protest and very possibly stamp my foot and refuse. I don't have celiac symptoms, I've been biopsied and bloodworked for it, and I've also been extensively worked over for crohn's. I really think it'd be a waste of time at this point. But Potions Master and Eve are concerned about what the fuck is going on. I predict there will be more tests soon.
Also, if I have to get lithotripsy, I have to get the neurostimulator turned off first, because it could interfere. What a drag.
My Octreotide shipment is late again because of the stupid pre-auth. We go through this every few months. I called the pharmacy today and they said that they got a pre-auth from the doc, but it was for the WRONG DOSAGE ARG. COME ON PEOPLE THIS IS YOUR JOB. They always seem to fuck this up.
I called my GP today to talk about my bloodwork from yesterday and he called back and left a long rambly message on my voicemail about my bloodwork from the ER (which was mostly normal, except for being overhydrated, because, well, duh, kidney stones) and he said "I hope that icebox in your stomach is still working out okay!" Hee hee.
That's all. More for my benefit than for yours, but I swear to you all, my life is so much more interesting than all this stupid medical shit.
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10:22 pm - goo
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I went over to Evan's house to hang out with his roommate today (she gave me another ridiculously cute polka-dot dress, I swear she is enabling my unhealthy obsession!) and I snuck into his room and stole one of his shirts. It is one of my favorites because it's really soft. It also smells like him. I hold it to my face and inhale and I feel somewhat better.
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12:19 pm - Halloween
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Halloween is coming up and I've been thinking about costume ideas. I'm pretty sure I've decided on the classic Tex Avery redhead. This would be especially awesome if I can get Evan to be the wolf. I'm pretty sure he won't, but I always have Ray as a back-up. I've always loved those cartoons, and the fact that the girl has a body that's pretty similar to mine. Plus, my health being as it is, I am not sure how much longer I can pull of a sexy halloween costume.
She has a couple different outfits. There's the sexy red and then the slightly classier white. There are also some other variations (red with a little bit of white detailing, a long red dress with a white coat, etc.) I tend to prefer red, just because it's a better color for me and white is so hard to keep clean. But the white one has gloves. And I'm having a doozy of a time finding a simple red dress or even a simple red bustier. Fredericks has this but of course, not available in my size. And this would be perfect, but it doesn't come in red. Trashy.com has one, but it's $200, which is way out of my price range.
I've looked in local stores, ebay, Victoria's secret, vintage stores, nothing. I wish I could sew. Any more suggestions, anybody?
( some of the original cartoons )
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| Monday, October 12th, 2009
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9:39 am - Ray
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Ray seems to really enjoy sleeping in this position. Evan snapped some photos of it a few weeks ago.
Apparently, it's really comfortable, but I think he looks hilariously dead.
( A few more )
Oh Rayray. Such a silly boy.
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8:08 am - class is about to start
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Fortunately, the painkillers have kicked in and I am not in agonizing pain.
Unfortunately, the painkillers have kicked in and I am super fuzzy-headed and have no idea how I'm going to take notes.
But I'm HERE. I am HERE and that counts for something.
Sorry for all the whining lately. I just kinda need to vent.
ETA: STILL TALKING ABOUT KIDNEYS. WTF. IRONY.
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| Sunday, October 11th, 2009
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8:44 pm - Irony
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I forgot to mention: my anatomy lecture on Friday was about kidneys and how they function. Win.
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8:34 pm - Out now
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So, I'm out of the ER. I got pain meds, and an ultrasound that showed a 1 cm stone in my right kidney.
That is one seriously big-ass motherfucking stone. The one I got lasered out of me was only half that size. That was four years ago.
The ER doc said I should see if I can pass it, and follow-up with my GP. I will probably do this and also go back to a urologist.
I hate urologists. They are the worst of doctors. Every one I have ever dealt with is either smug, arrogant, obnoxious, or just generally an all-around jerk. I would prefer not to have to see one again. But I really don't think I am going to be able to pass this stone and I would like to get it the fuck out of me as soon as possible.
I apologize for inundating my friends list with swears. I am just really aggravated and grumpy. I have a lot of work to do, and I had a lot of things I wanted to do, and now I'm not getting to do any of it. Grump.
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1:43 pm - In the ER waiting room
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The stone keeps getting stuck and making me hurt really bad. It's unstuck right now, so the pain is at a one, but I'm pretty sure it'll be back. I also want to get a CT, because I have a feeling this is a big one. They're making us all wear masks because of the risk of swine flu.
( Stylish, huh? )
Kevin is on his way to keep me company. I really don't like it here. I want to go home.
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12:10 pm - And, of course, it never fails.
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On top of my period, the thrush infection, and a CIP flare that kept waking me up all night, this morning I started to feel the familiar constant ache of a kidney stone in my right flank. It was bound to happen, since one of my antibiotics can cause them and I'm prone to them anyways. I think this makes stone number sixteen since I started getting them six years ago. I thought I was going to have to go to the ER, but the Vicodin I took finally kicked in. So I'm a bit loopy now. I hate Vicodin. I'm glad this didn't happen yesterday, but I wish it had waited a few more days. I have a lot of work to do.
I'm a little unhappy about this, but I'm really more irked than anything. I guess I'm getting a lot better at dealing with illness, emotionally. I'd just like to be able to keep on living my life properly without all these bumps in the road.
ETA: Opiates always make me lonely for some reason, and since Evan is not around, if anyone would like to talk to me on AIM, I'd really appreciate the company.
current mood:  annoyed
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| Wednesday, October 7th, 2009
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2:32 pm - IUD
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I got it. That was fairly horribly painful, although it was over quickly, so it wasn't that bad. But now I am crampcity. cramptacular. crampalicious. it is also causing my intestine to go haywire. Am taking painkillers and going to go take a bath and resist the urge to gauge out my uterus with an ice-cream scoop.
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